The Need For Support

Originally posted on  my Blogger Page

Everyone needs emotional support. This is a statement that cannot be stressed enough. Yet, many people do not get the support and encouragement they so deeply need. When you go through a difficult time it is important to find people who will  champion you on your journey.  It really is  very basic need. Without the support of family, friends and community,  the suffering of people with  illnesses is deepened. For many, the emotional pain of a condition is worse than the physical condition itself. So many people become isolated because  they think that others find them to be a burden. It is probably not true, but  we who live with ongoing conditions tend to think so anyway. Please do not wait until the one who has a difficult illness approaches you for support. It may not happen. Build a trust with the person and be patient. I   will tell you this- Being a quiet, introspective person, I do not share all the  moments of my life with people, but I do share with those I trust.
 Advice is usually not wanted, appreciated, or well received, though once asked for, it is considered. Again, patience is key. When dealing with a person who is struggling, often the most helpful thing is to simply sit down and quiet be in the room.

Epilepsy and Disability
Under certain conditions an adult with epilepsy may be eligible for disability benefits from social security. The Social Security Administration receives many applications from people for disability coverage. Depending upon the type of seizures and the frequency of them, it is possible to receive benefits. Epilepsy is not necessarily a disabling condition, however it can be. A person seeking disability benefits because of a seizure disorder, must go to the Social Security Administration for evaluation. When the case is evaluated it will be assigned to a claims evaluator. This person will assess the information to find out if in fact the person applying for disability benefits does in fact qualify to receive them. That means that a person who is seeking such benefits must be prepared to provide evidence as to the need. The evaluator will be looking for information on the diagnosis of epilepsy along with a detailed description of the nature of the seizures, and all the symptoms. The examiner will take a statement from the doctor about your case to collect information about the frequency of the seizures and all medications that have been prescribed. This person will probably ask you about witnesses in other words he or she will be asking who has seen the seizures. The examiner will be looking for the EEG results, and any more information that can be provided about other treatment and your response to them. This may include blood work. Another consideration will be whether or not you have been compliant with your medication treatment over the past months. The examiner is looking to determine your level of impairment. In order to qualify for disability benefits based on convulsive epilepsy you would need to show that you have at least one seizure a month, a tonic clonic or grand Mal seizure. These should be expected to be seizures does it come the daytime and have a loss of consciousness or nighttime seizures  that interfere with daytime activities.
Adults who have partial seizures may meet the standards required f that person has at least once a week in spite of compliance with medications and those seizures interfere deeply with daily routines and cause a display of abnormal behaviour.

Seizures Defined

A seizure is a temporary interruption of brain activity that occurs at times of unusual and excess electrical flows in  a person’s brain cells.

There are other things that may  appear to be   seizure activity having  a root  that is not physical, but emotional.  These are known as Psychogenic, Non-epileptic Seizures (PNES). This type of seizure is not epileptic. The doctor may choose to send you to a psychologist  to help resolve the emotional triggers. If you or a loved one have been diagnosed with PNES, this does not mean that your seizure are in your head, or not real. What it does mean is that the seizures are not caused by misfiring electrical impulses, as is the case in Epilepsy.



Safety Concerns

People with epilepsy and other seizure disorders, often express concern for their physical safety. Some are afraid to live all alone. Others are fearful that certain activities my trigger a seizure. There is also concern for the safety of others. People assume that they are safe in their home, the same way that we assume that a chair will support your weight.   However, those to live with epilepsy do  not feel that we can take our personal safety for granted.  More seizures occur in the home than anywhere. Most of the accidents associated with at home seizures can be lessened when appropriate safety measures are added. For example, when preparing meals, a good food processor can be used rather than a knife to reduce the likelihood of knife accidents. Cooking using a slow cooker or a microwave oven may reduce burns and maybe safer than using the stove top or the oven. I personally do not prepare food when I have a migraine, as this may be a warning of an impending seizure.In  the bathroom it may be desirable to replace glass with shatter proof glass whenever possible to reduce cuts and serious injury. Some people prefer to put carpeting in the bathroom floor or else they use area rugs. This may prevent serious injury during a fall. It may help to have a door to the bathroom that opens at work to the hallway. This will make it easier to enter the bathroom in an emergency. A person who falls to the floor during a seizure may block the entrance making it difficult to get help. Rounded corners on the cabinets are also helpful and may prevent injury. To prevent accidental electrocution have outlets on the walls away from the water sources.

Copyright 2018-2024 by Cynthia E Maher